Welcome to the NGPAPJ Wiki.
The imperative of the NGPAPJ project is to improve healthcare for children and young people (CYP) with non-communicable diseases (NCDs) demands innovative, integrated care models. As such, we aim to develop a next-generation integrated care trajectory to improve the outcome and enhance the cost-effectiveness of moderate to severe asthma in children and adolescents with maintenance and reliever therapy (MART) with or without comorbidities, called ‘Next Generation Pediatric Asthma Patient Journey’. We want to evaluate the value created by implementing an innovative care trajectory for children and young people (CYP), using moderate to severe asthma as a prototypical (NCD).
The ultimate goal is to improve the overall health of young patients with chronic diseases, as well as to organise care more efficiently, thereby freeing up more resources and giving patients easier access to new disease-modifying therapies that are not currently reimbursed. In this project, we will conduct a technical proof of concept to transform the classical model of a care pathway into an innovative and integrated care trajectory for a prototypical chronic condition in the pediatric population, scalable to many other non-communicable childhood diseases.
Specific Objectives Our project aims to discover whether innovations in digital healthcare for children and young people will lead to better outcomes and will effectively improve important clinical and patient-reported outcomes, such as disease control and patient quality of life; while, in the meantime, making the organization of care for non-communicable diseases in children and adolescents more efficient and streamline integrated care across the different care levels. Hereby, we focus on improving self-management and optimizing transitional and integrated care for a specific target group that has not yet been explored in the context of digital health.
Utilizing asthma as a prototypical NCD, we address critical barriers to multi-stakeholder collaboration, notably interoperability challenges and the fragmented integration of digital health tools within existing healthcare ecosystems. By applying a methodology that enables interoperable data integration across all relevant healthcare settings (primary, secondary and tertiary care), regardless of their EHR system, structured data can be captured automatically and, by implementing a digital health framework, essential health data can be exchanged.
The project was coordinated by Margot Baes (margot.baes@azdelta.be) and Dr. Karin Decaestecker (karin.decaestecker@azdelta.be).